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Title: Lung Cancer Stigma Across the Social Network: Patients’ and Caregivers’ Perspectives
Authors: Occhipinti S; Dunn J; O'Connell DL; Garvey G; Valery PC; Ball D; Fong KM; Vinod S; Chambers S
Categories: Cancer Type - Lung Cancer
Year: Oct-2018
Journal Title: Journal of Thoracic Oncology
Volume: 13
Issue: 10
Abstract: Abstract OBJECTIVE: To examine the personal experiences of people with lung cancer and their caregivers and how stigma is manifested throughout a patient's social network. METHODS: A qualitative thematic analysis of interviews with 28 patients with lung cancer and their caregivers was conducted. Telephone interviews were conducted and transcribed verbatim. Data analysis was guided by contemporary stigma theory. RESULTS: Patients and caregivers reported feeling high levels of felt stigma and concomitant psychological distress in response to the diagnosis of lung cancer. Three overarching themes emerged: the nexus of lung cancer and smoking, moralization, and attacking the link between lung cancer and smoking. Stigma was inevitably linked to smoking, and this formed the hub around which the other themes were organized. Caregivers reported feeling invisible and noted a lack of support systems for families and caregivers. In addition, there was evidence that caregivers experienced stigma by association as members of the patients' close networks. Both groups responded ambivalently to stigmatizing antismoking advertisements. CONCLUSIONS: The qualitative analysis demonstrated the complex interplay of the social and personal domains in the experience and outcomes of stigma in lung cancer. There is a significant potential for caregivers of patients with lung cancer to experience exacerbations of psychosocial distress as a consequence of widely shared negative views about lung cancer and its prognosis. It remains for researchers and practitioners to incorporate such complexity in addressing stigma and psychosocial distress in both patients and caregivers.
Division: Cancer Research Division
Funding Body: This study was commissioned by Cancer Australia. Dr. Valery was supported by an Australian National Health and Medical Research Council Career Development Fellowship (APP1083090). Dr. Garvey was supported by an Australian National Health and Medical Research Council Early Career Fellowship (APP1105399).
DOI: 10.1016/j.jtho.2018.06.015
Appears in Collections:Research Articles

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