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Title: A tsunami of unmet needs: pancreatic and ampullary cancer patients' supportive care needs and use of community and allied health services.
Authors: Beesley VL; Janda M; Goldstein D; Gooden H; Merrett ND; O'Connell DL; Rowlands IJ; Wyld D; Neale RE
Categories: Cancer Control, Survivorship, and Outcomes Research - Patient Care and Survivorship Issues
Cancer Type - Pancreatic Cancer
Year: 2016
Journal Title: Psycho-Oncology
Volume: 25
Issue: 2
Page number start: 150
Page number end: 157
Abstract: OBJECTIVE: People diagnosed with pancreatic cancer have the worst survival prognosis of any cancer. No previous research has documented the supportive care needs of this population. Our objective was to describe people's needs and use of support services and to examine whether these differed according to whether or not patients had undergone surgical resection. METHODS: Queensland pancreatic or ampullary cancer patients (n = 136, 54% of those eligible) completed a survey, which assessed 34 needs across five domains (Supportive Care Needs Survey-Short Form) and use of health services. Differences by resection were compared with Chi-squared tests. RESULTS: Overall, 96% of participants reported having some needs. More than half reported moderate-to-high unmet physical (54%) or psychological (52%) needs, whereas health system/information (32%), patient care (21%) and sexuality needs (16%) were described less frequently. The three most frequently reported moderate-to-high needs included 'not being able to do things they used to do' (41%), 'concerns about the worries of those close' (37%) and 'uncertainty about the future' (30%). Patients with non-resectable disease reported greater individual information needs, but their needs were otherwise similar to patients with resectable disease. Self-reported use of support was low; only 35% accessed information, 28%, 18% and 15% consulted a dietician, complementary medicine practitioner or mental health practitioner, respectively. Palliative care access was greater (59% vs 27%) among those with non-resectable disease. CONCLUSION: Very high levels of needs were reported by people with pancreatic or ampullary cancer. Future work needs to elucidate why uptake of appropriate supportive care is low and which services are required.
Division: Cancer Research Division
Funding Body: (1) National Health and Medical Research Council of Australia. Grant Numbers: 442302, 613654 (2) NHMRC Career Development Fellowship. Grant Number: 1045247
DOI: 10.1002/pon.3887
Appears in Collections:Research Articles

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