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Title: Improving outcomes for Aboriginal and Torres Strait Islander people with cancer requires a systematic approach to understanding patients' experiences of care
Authors: Green M; Cunningham J; O'Connell DL; Garvey G
Categories: Cancer Control, Survivorship, and Outcomes Research - Population –based Behavioural Factors
Year: 2017
Journal Title: Australian Health Review
Volume: 41
Page number start: 230
Page number end: 233
Abstract: Indigenous Australians experience a greater burden of cancer than other Australians, but there is little systematic information about their experiences of cancer care. Patient-centred care is increasingly recognised as one of the core domains of quality care, alongside clinical effectiveness and patient safety. Qualitative studies have identified significant issues relating to Indigenous patients’ experiences of cancer care, but these data are often insufficient to inform and evaluate health service improvement. We need to establish appropriate methods that will lead to systematic, routinely collected, accurate, population-based data on the experiences of care of Indigenous people with cancer, and determine how best to translate these data into improvements in the delivery of care to this population. Genuine Indigenous leadership and involvement will be necessary, with the whole approach underpinned by the primary aim of improving health outcomes for this population.
Division: Cancer Research Division
Funding Body: This Perspective was undertaken under the auspices of the Centre of Research Excellence in Discovering Indigenous Strategies to improve Cancer Outcomes Via Engagement, Research Translation and Training (DISCOVER-TT CRE, funded by the National Health and Medical Research Council (NHMRC); #1041111) and the Strategic Research Partnership to improve Cancer Control for Indigenous Australians (STREP Ca-CIndA, funded by Cancer Council NSW (SRP 13–01) with supplementary funding from Cancer Council WA). The authors also acknowledge the ongoing support of the Lowitja Institute, Australia’s National Institute for Aboriginal and Torres Strait Islander Health Research. JC was supported by an NHMRC Research Fellowship (#1058244).
DOI: 10.1071/AH15214
Appears in Collections:Research Articles

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