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Title: Cancer patients' preferences for written prognostic information provided outside the clinical context
Authors: Davey HM; Butow PN; Armstrong BK
Categories: Cancer Control, Survivorship, and Outcomes Research - Surveillance
Keywords: Adaptation,Psychological; diagnosis; Female; Humans; Information Services; Middle Aged; Neoplasms; pathology; Patient Education; Patient Satisfaction; Physician-Patient Relations; Adult; Prognosis; Psychometrics; Public Health; relative survival; Research Support,Non-U.S.Gov't; survival; therapy; Truth Disclosure; Writing; Aged; Aged,80 and over; analysis; Australia; cancer; CLEAR; Communication
Year: 2003
Journal Title: British Journal of Cancer
Volume: 89
Issue: 8
Page number start: 1450
Page number end: 1456
Abstract: Cancer patients' preferences for written prognostic information independent of the clinical context have not previously been investigated. This study aimed to assist a state cancer organisation to provide information to patients by assessing patients' understanding of statistical information; eliciting their preferences for framing, content and presentation; and assessing the acceptability of a card sort for obtaining preferences. With the exception of conditional and relative survival, initial difficulties in understanding statistical concepts were improved with a plain language explanation. Analysis of the interview transcripts revealed that participants generally supported the provision of written information about survival in booklets and on the Internet. They wanted positive, relevant and clear information. Participants said that the use of, and preferences for, this information would be affected by a patient's age, time since diagnosis, ability to cope with having cancer and the perceived credibility of the information source. They found the card sort acceptable, saying it made the assessment of understanding and selection of preferences easy. This study has identified two fundamental, and sometimes conflicting, factors underlying patients' preferences: the communication of hope and the need to understand information it has also identified patient characteristics thought to influence preferences. These factors and characteristics need to be taken into account when developing written prognostic information for patients
Programme: Health Services Research
Division: Cancer Research Division
Appears in Collections:Research Articles

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